Friday, December 18, 2009

Update on our Progress

Progress isn't the right word, really... that brings a sense of smooth and orderly movement toward a clear goal. THIS, on the other hand, feels like driving an old stagecoach in a black and white western-- the ones with galloping horses attached by a thick wad of reins to a bouncing driver who's not in control, but just trying to stay on board! To paraphrase Lance Armstrong, "It's not just about the ice."

  • got a federal EIN # for The PHD Program from the IRS
  • with an attorney, submitted Articles of Incorporation State of NE
  • spoke to the personal trainer on developing the PHD individual plans
  • working on our ongoing collaboration with the local APDA
  • coordinated with TeamFox staff on handling funds generated
  • learned 'blogging' from scratch and updated posts
  • recruited an 'expert' to design the PHD logo ( thanks Phil!)
  • recruited help to design the PHD brochures
  • started Facebooking (?) to increase awareness and participation
  • co-hosted Young Onset support group dinner; recruited
  • set up SkateAThon committees in family: food/scheduling/prep
  • worked on 501c3 application, and the Bylaws for PHD Program
  • met with a PD researcher about measurement & assessments
  • sought help to set up accounts/Donation button on website
  • scouted possible free publicity: FB, TV interview, newspaper?
  • got excited requests from families wanting to join PHD Program
  • and shoveled snow

In reading the list, now I guess it does sound like progress...If there is one thing I have learned from Parkinson's, it is that movement doesn't have to be smooth to get the job done...don't worry about how it looks to others-just adapt, keep moving and enjoy the ride. Giddy up!!



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