Sunday, December 12, 2010
Go BIG or Stay At Home- We Are Moving!
UNMC campus ice rink is the new home of the Skate-a-thon! Come join us January 28-29th.
Our family is thrilled to work with this organization that is such a leader in the fight against PD. Visit the new website at http://phdomaha.org/ for more info on this fun 2011 Skate-a-thon. Please join us- Sign up to skate, or attend the party or to donate generously- Everyone can be part of this - Come help us put Parkinson's on Ice!
Monday, November 8, 2010
The Stage Manager
Fall transforms our yard- the roses fade, mums begin to bloom and glorious yellows and reds grace our trees. The wisdom of the seasons reminds us to expect all these changes, even to see special beauty in them. For our family, the cool temps also means that preparing to put down and fill the ice rink draws closer...as if a silent stage manager is choreographing every move.
But what of those transitions or seasons of our own aging...or health? Is it possible to find some serenity, wisdom or even beauty in our own 'Parkinson's autumn' of fading colors, slower movements and tentative balance? Or at least to carefully observe these changes, without fear or judgement? In the coming weeks, the 'stage' will be set and the ice rink filled. Come back often to watch the transition, and to meet some vibrant creative people who are skating circles around PD.
Thursday, March 4, 2010
What I Did On My One Month Vacation
- Recommitted to my own exercise program. In the rush up to and after the SkateAThon, I was hypocritically neglecting any exercise while forming a program- for exercise! Work- outs with trainer & friends, Bikram yoga, body pump, aerobics...I am back on track.
- Designed, copied, addressed (with lots of help) and mailed hundreds of Thank You notes.
- Spent hours at this computer writing and filling out forms for IRS application of 501c3.
- Got to travel to Minneapolis and Duluth, spending time with loved ones & little ones.
- Celebrated our 36th wedding Anniversary...even made my own gift in honor of it for Ted.
- Worked on developing 'intake and assessments' for those joining the PHD program.
- Networked and checked out some exciting resources for the program- visited WellBound Gym, worked out with Mick Doyle and learned boxing routines- awesome workout!
- Attended the PAN (Parkinson Action Network) Forum, on national policy issues.
- Enjoyed returning to some of my other life-giving gifts: DeMello group, my Thursday CEC prayer group, Servite Center poetry evening and spending Lots of time with Ted.
- Met with and lined up a catering firm for our daughter Mary's wedding in August.
- Welcomed several groups, kids and families to skate- and skated with most of them. :)
- Attended 6+ hockey games and watched many more on TV- and hours of Olympics.
- Made arrangments for 2 trips: Leaving Tuesday for Snowmass Monastery with the Steamboat crew, then back to New York City in April! Flying with friends Helen and Jacey to attend the Michael J Fox MVP dinner and Unity Walk, and celebrate together as our own Monnie Lindsay gets a national award that day- in Central Park with 12,000 PD folks!
I did miss you too...Sun is shining, the birds are singing, and dinner is cooking. any questions?
Wednesday, February 3, 2010
Gratitude...By The Pound
Thursday, January 28, 2010
...Anything But!
Someone asked yesterday, "Won't your life seem boring now that the challenge of the SkateAThon is past?" Her question surprised me, and I have reflected on it. After a big trip, challenge, project, or holiday-our time and focus configures itself again...and we get back to 'normal.' Perhaps it's quieter and the thrill of challenge has abated,but suveying the 'normal' of the life you are building at this moment is a good practice....
So, since I am up... My panorama photo above is one that my brother Phil from Phoenix created, and we'll start my survey there. It reminds me of today- 24 hours- a stage waiting to be graced.
Today, ten minutes in the hottub is bliss - muscle stiffness fades as I gaze at the world and sky.
36 years ago- we each had just one best friend stand up for us at our wedding- Barb and Bim. Last night, we had a fabulous dinner with Bimbo ( no explanation of that name coming) at Flemings. Today, Barb and friends arrive from Steamboat Springs to stay here, while celebrating her mother's 90th Birthday. Today, I celebrate lifelong friends.
Today is Grandparent Day at Preschool, so I enjoy 3 grandchildren, children of Cristen & Jenny!
Today, my response is due- son Daniel in NYC, asked me to read something, offer suggestions. (that's a thrill for me)
Today, is my first day of a new clinical trial, taking a PD medication - they won't find answers in research unless we help.
Today, I meet with 3 friends for a prayer/spirituality/breakfast group ( in 1/2 hour)
Today, my spouse Ted goes up to Duluth Minnesota to play Pond Hockey (google it- I had never heard of it either) out on Lake Superior with friends, staying with daughter Michaela and family. Yes, he's got it- bad! Brrr!
Today, reviewing catering bids for daughter Mary's wedding, I pray for their new life together.
Today is trash day for our neighborhood. And today I am thankful for their cold hard work.
Today..is all any of us have. and surveying the panorama...Skate out on each minute of this brand new day, makiing unique lines on the clean surface. It is more than enough.
Saturday, January 23, 2010
Miracles On Ice!
- The donations just hit $10,120.83 !! Unbelievable? Not any more!
- 312 people attended, and more skated this year than ever before.
- Checks to the Michael J Fox Foundation = $1,035.00 so far.
- No one, not one person- got hurt. Isn't that remarkable??
Once in A Blue Moon
- Our relief after several fuses blown early in the evening ( think Chevy-I-never-met-an-extension-cord-I-didn't-like Chase in Christmas vacation....and lights twinkled all night.
- Cutting the ribbon to skate with Ted, as newly appointed Grand Marshall Doug in his Marley-dreadlocks hat and toting champagne, rang the bell for our Opening Ceremonies.
- One little girl, reluctantly persuaded to try on skates and use our system of pushing a 4 legged kitchen stool...later skating all on her own, with a grin as big as the discarded stool.
- A line of little kids and adult players in full gear all swaying side to side as they sang the National Anthem and O Canada...then diving across the ice yelling "Let's play hockey!"
- The beaming smile of a Marian coach, surrounded by several girls on her 2000 State Championshiup team, now catching up with friends while juggling babies and toddlers.
- A newly married couple coming just to skate after seeing the KMTV interview, looking up as she put on her new skates, and found a good friend- one of our married daughters.
- The enthusiasm of one young man on his way out the door, digging in his jeans pockets for crumpled bills while saying, " I had such a blast- I need to put in more money!"
- The soft glow on 40-50 faces, crowded closely in the light of Birthday candles on the cake, all outside singing Happy Birthday to Mark, Emily and Johnny at 1 am.
- Watching Ted's face, his enjoyment in seeing the big tent full of excited skaters anxious for their turn...and even our shuttle drivers in the street could hear the crowd cheer.
- Walking across the ice holding the arms and seeing the smiles of dear friends Monnie and Helen, the co-inspirations of the PHD Program, to be together in one of the group photos.
- A friend, wide-eyed at the panorama of fun, offering to connect me to a wonderful yoga teacher for the Program, and another offered to professionally create a PHD website.
- Fighting back tears of joy as we stand with his parents, watching their son who fought a life-threatening illness recently, now a visible answer to prayer skating in the morning sun.
- And Travis sleeping soundly in a chair.
Tune in Monday for the complete results and an announcement about our lofty goal.
The next blue moon won't occur until 2012...but the glow from this one will easily last 'til then!
Thursday, January 21, 2010
MCHL Heroes- by Ted Wuebben
I told someone the other day when I started hockey, I watched (much like a child) as you MCHL players walked out of the locker room toward the ice and the benches...no sound under the skates, just a soft squeak from the rubber mats....but a distinct air about them, almost warrior-like on their march to do battle. Wow, if only I could learn enough so I could walk in my skates without buckling my ankles or waffling back and forth! Never did I realize the fabulous people that filled those skates.
Wednesday, January 20, 2010
Winning the Weather Lottery
Tuesday, January 19, 2010
SkateAThon 2010 Rocks!
Monday, January 18, 2010
The Day After
Sunday, January 17, 2010
24 Hours Complete!
And among our blessings was the chance to witness the complete dedication of our children, siblings and Mickey- to every detail over every minute....It was Awesome! Will post results within a day ....but when we get to add up the number of people who came and funds raised, I think it will confirm what WE already know- SkateAThon 2010 was successful beyond our wildest dreams...again, Thank You!
But wait...speaking of dreams, I am not even really awake....I just came out for a glass of juice- Back to bed.
" I in my kerchief and Papa in his cap...have just settled down for a long winter nap."
Thursday, January 14, 2010
Day 1 - Check
So we enter Day 2 having raised over $5,000! Thanks to all of you who came by last night, who have donated time, money, energy, food and support. We couldn't have done this without each of you!
On The Eve
Wednesday, January 13, 2010
This Is " Nacho" Average Party!
First, some MCHL buddies came to shovel the whole rink and then play, a dry run to 'condition the ice' and try the firepit. My personal trainer's mother, in town from Cozad, offered and is now busy helping us out.
Hold the Bleu Cheese
Fortunately, the only person I was willing to consult was the right one. My wise mother knew that secrecy would only trap us- each with our own heartache and fears, insulated from cutting edge information or loving support from others...which has made all the difference! How lucky, to be given what we need, rather than what we want. Now, four years later, life is so good. And so we skate, as we have for years- the simple flowing motion brings us pleasure, gathers friends and family (those are just Some of my brothers and sisters!) and now promises hope for others. ....Never mind my order...just bring me the Special.
Monday, January 11, 2010
Follow The Money
The past 2 SkateAThons raised over $ 11,000. for the Michael J Fox Foundation, the largest single funder of Parkinson's research. This year, the proceeds will also start the PHD Program(Parkinson's Health Development) to offer holistic exercise and activities to persons with PD, at affordable rates. While research into causes and cures is important for progress in the future, this year our focus shifts to those real people in Omaha facing PD- now. Often careers have been cut short, insurance is costly or denied, medical and pharmacy bills escalate, and the financial strain looms, in an illness made worse by stress.
All we have is now- this day. Even though research shows that the course of our PD can be positively affected by specific, intense, frequent and cognitively challenging exercises - finances can be such a stress that even accessing services that could help the course of your illness (since they aren't covered by insurance) can seem out of reach. The PHD Program, run BY people with PD, FOR people with PD, can be part of the answer- bringing hope and options within reach.
The PHD Program will work with teachers in a variety of disciplines: yoga, tia chi, personal training, dance, boxing, meditation- to schedule classes at accessible sites, at optimal times for partcipants, at reduced cost. Then PHD will supplement the cost of the activity, to make it more affordable for individual with PD and family member. With our exceptionally high incidence rate of PD in Nebraska, it will make a difference. Skate along with us toward this goal.
"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." M Mead
Friday, January 8, 2010
What Goes Around, Comes Around
Climbing up the bleachers to say Hi to every person in the stands at a game, he's the first to simply show up, pray or offer to help, while making anything more fun with his shenanigans.
Now it might seem comical to have a Parkinson's Disease event outside in the cold (which can trigger stiffness or tremors), with an activity that depends on balance ( often a challenge) and that lasts 24 hours straight ( for those of us with sleep disturbances!) But so much fun, and so much good, has come since his remark... and memories piled higher than the snowbanks that now surround the rink. There, in his words, is also the best way to live with PD, or any challenge.
Wednesday, January 6, 2010
"Where Everyone Knows Your Name"
Well, that is the way SkateAThons have been in the past. Friends gathering for a great time, by the ice, around a fire, with food and drink in hand....Sounds nice doesn't it?
No need to have skates, we have plenty.....no skating experience necessary....we had none when we started. So contact your friends or family and pick any time you want to gather and sign up.
24 hours is a long time...and we still need names to actually write down.
The group-party hours for the MCHL hockey league, Woody & Emily's birthday party and Marian are all filling quickly- thank you! Attending with your friends is more fun, for you and them, so let's check with each other and create community while supporting a good cause, just pick any of the 24. Oh, and the closing ceremony has been known to include popping a cork or two... Let us know if you are able to help fill in some of our empty slots!
If you have trouble trying to RSVP or sign up on the blog, just shoot me an email with your shift preference: cwuebben@cox.net. and Your name will be here. ..and we can't wait to see you!
Monday, January 4, 2010
The Temp is Rising
But inside, preparations for the SkateAThon are cookin' and people are getting excited. Our family is pretty laid back, but hosting parties and having fun- is very serious business. Actually, that's how Ted and I connected- just after our first date, he asked me to help him get ready for a party...a college kegger ( you know the type- 200 kids and nary a potato chip to be found) All legal, I hasten to add, because the age was 19 then. So we spent an afternoon giggling while scooping and hauling ice, free, from the CU Bus Ad building, with his infectious shoestring creativity "It's Saturday, no one's here to use ice anyway!"
To all getting involved for a good cause- Thank you!
- Organizing a shuttle service, because our street is now snow clogged, so you can park nearby and get a quick ride to and from your car safely.
- Friends in the Metro Classic Hockey League are turning out in force 11pm-1 am to play (to hear them last night, it will rival the Stanley Cup)
- Micki K, Hostess, stayed 24 hours last year...is now getting sponsors for her marathon devotion, tracked by hourly webcasts to sponsors.
- Marian High alums are gathering Sat. morning at 10 am. with rumors of the Class of 2000 dominating turnout- just as they did State- X 5! Children are welcome.
- Our future son in law, Mark, stepped to the plate by hosting his birthday party in the Wee hours- when friends do their best work, and we could use DH skaters.
- Offers for supplies ( thanks Randy!) food & beverage donations flowing in, we may have a premier of a new hot spot's menu, if it's a good night.
- Ice skates all labeled with sizes, written on blue painter tape- guess who?
- Donation total= an amazing: $ 610. 00! It's getting warmer all the time.